Today’s 08:27 was led by Roland Sinker, chief executive.

  • Firstly we acknowledge that the events in Eastern Europe are unsettling and we are aware that some people will be quite anxious
  • Some colleagues and patients will have personal links to Russia or the Ukraine, or countries nearby, and ask that everyone is supportive and respectful
  • Please be calm, patient and compassionate over next few unsettling weeks ahead
  • Secondly we know we are moving through the third wave of Covid 19 and looking to continue reactivation of all our services
  • We acknowledge that staff are very tired. Please be kind to each other, listen to each other and ask the person next to you if they are OK
  • It’s an unsettling time and we’re at another point of transition, but there are some very exciting things ahead – it’s an opportunity for the broader Cambridge community to come together and shape the future as we build some of these very exciting hospitals.

Operational update – Ewen Cameron

Covid

  • There are a number of quite positive signs:
    • Prevalence in community is decreasing
    • The number of staff testing positive is falling
    • and the number of patients admitted with Covid is also falling
  • Signs are we should continue to see reduction over the next few weeks
  • As a result, we have been able to open up half of F4 as green
  • However, it’s not over; we currently have five bays closed due to Covid contacts and we should therefore continue to follow current guidelines.

Lassa fever

  • Massive thank you to all the people involved in sorting out our response to this really difficult period in time – both in our hospital and in hospitals around the region
  • We are now coming towards the end of the incident in terms of staff availability – all isolating staff will be back this Thursday

Urgent emergency care

  • Since the end of the Covid peak we have seen a significant increase in attendances at the ED
  • This is having a significant impact on crowding in the department
  • We are continually working to adapt the models of care, for example moving the discharge lounge to EAU3
  • We are hoping to convert G2 to a frailty unit for our older patients
  • We are hoping to convert EAU4 into entirely trollied assessment unit
  • The additional capacity coming online will make a huge difference
  • A huge thank you to everyone for the work going on so far.

International Rare Diseases Day – Kate Downes and David Rowitch

Kate – rare disease lead scientist
Our laboratory not only provides genomic services for whole of Cambridgeshire, it is also the lead organisation for the East NHS Genomic Laboratory Hub

David – professor and head of department of paediatrics at the University of Cambridge, with a laboratory in the Wellcome Trust-MRC Stem Cell Institute
Professor Rowitch’s interest focuses on functional genomic technologies to better diagnose and treat rare neurogenetic disorders in children

  • Yesterday was international rare disease day when we celebrate and build awareness around patients with rare diseases and their families, and try to make sure the community feels heard
  • 5 million people in the UK have a rare disease, so it’s not that rare (compared to 100,000 people in the UK with multiple sclerosis) – this is one in 17 people
  • This equates to 300,000 people in the east of England
  • About 90% of rare diseases are genetic
  • Very important for patients to have targeted diagnosis and therefore information on their disease
  • The Next Generation Children’s project is taking the genetic tools and putting them to work for our sickest children
  • We’ll use the latest advances in genomic medicine not just to treat illnesses, but to help us prevent them in the first place
  • This post diagnostic pathway for children with rare diseases will transform the development of paediatrics
  • 11 year old Eilidh has one of the rarest neurodevelopmental disorders in the world. Her family share their remarkable story to highlight Rare Disease Day. Read Eilidh’s story here: https://www.cuh.nhs.uk/news/eilidhs-story-a-rare-discovery/
  • Whole genome sequencing leads to better care for Millie-Mae, who has severe epilepsy. Read Millie-Mae’s story here: https://www.cambridgechildrens.org.uk/our-hospital/your-stories/millie-maes-story/
  • Some disorders are really devastating and it’s very important we provide the families with as much information and support as possible
  • Some patients don’t receive a genetic diagnosis, so it’s important we feed this information back into the system
  • Reorganisation of genetic and genomic testing services in England into seven NHS Genomic Laboratory Hubs as part of the national NHS Genomic Medicine Service means that everyone gets the same care and the service is centrally commissioned
  • It also provides us with standardised pathways, so every patients receives the same test and same standard of care
  • Cambridge Children’s hospital will include research to support benefits to patients and support the entire region and give us the tools to take care of these patients much better.